About CBTF

The Childhood Brain Tumor Foundation (CBTF) is an all-volunteer organization founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for (pediatric) scientific research, to heighten public awareness of this more devastating disease, and to improve prognosis and quality of life for those that are affected.

All donations are tax-deductible. Please visit our Support CBTF page to see ways in which you can donate to the Childhood Brain Tumor Foundation.

We are determined to find a cure and offer hope to parents facing heartbreak.

CBTF Beginnings

Founded and incorporated in Virginia 1994, dissolved.  In 1998, CBTF became incorporated as a Maryland charity.  The Foundation, a 501(c) (3), strives to meet the goals of our mission. We are dedicated to serving the needs of families and children with brain tumors, in hopes of improving the quality of life and find cures for pediatric brain tumors. Annually, CBTF funds basic science or clinical research for pediatric brain tumors, conferences, and other programs.

We provide informational materials on our website and mail other information (nationally and internationally) upon request. If you would like to receive information, need a resource list, referrals to experts for consults, or to join our mailing list, please contact us with your name, address, phone number, and e-mail address. Any personal information we collect is kept private.
We do not sell, rent, or distribute our list to anyone.

Some families do submit stories and photographs for our newsletter and they may be posted on our website unless requested otherwise.  Stories may be written under a pen name for privacy, if preferred.

Please feel free to contact using our Contact Us form.  Questions:  Email preferred This email address is being protected from spambots. You need JavaScript enabled to view it.

CBTF is not responsible for the information on the links we have selectively posted and are not endorsements. The information on our website is not a substitute for medical advice. Information may be subject to change.

Board Members

Jeanne P. Young, President
Carol Cornman, Vice President
Kirsten Baker, Vice Pres./ Secretary
James M. Young, Treasurer


Elizabeth Irvin
Susan Lyon, R.N.
John Moore
Claire Wynn


Gilbert P. Smith, J.D.
Grace Powers Monaco, J.D.

Special Scientific Advisor

Gil Smith, Ph.D., Bethesda, MD

Legal Advisor

Frederic Rickles, Esq., NY

Advisor - Survivorship

Lauren Hancock, RN, MSN, CPNP, AC       Children's National

Debbie Lafond, DNP, PNP-BC                              Children's National 

Katie Dinterman McHugh MSN, RN                    Children's National


Founding Advisor / Advisory Chairman

Roger J. Packer, M.D.
pediatric neurologist
Children's National Hospital
Washington, D.C.

Scientific Advisors

Susan M. Blaney, M.D.
pediatric oncologist
Texas Children's Cancer Center
Houston, TX

Kenneth J. Cohen, M.D.
pediatric oncologist
The Johns Hopkins University School of Medicine
Baltimore, MD

Charles G. Eberhart, M.D, Ph.D.
Johns Hopkins University School of Medicine

Paul G. Fisher, M.D.
pediatric neuro-oncologist
Stanford Cancer Center
Stanford, CA

Eugene Hwang, M.D.                                                          pediatric neuro-oncology                                                 Children's National Hospital

Lindsay B. Kilburn, M.D.                                                                                  pediatric neuro-oncology                                                  Children's National Hospital

Tobey J. MacDonald, M.D.
pediatric oncologist
Aflac Children's Healthcare
Atlanta, GA

Eva Perdahl Wallace, M.D., Ph.D.
pediatric oncologist                                                               Kaiser Permanente

Eric Raabe, Ph.D. M.D.                                                   pediatric oncologist
The Johns Hopkins University School of Medicine
Baltimore, MD

Brian R. Rood, M.D.
pediatric oncologist
Children's National Hospital
Washington, D.C.

M. Isabel Almira Suarez, M.D.                                            Children's National Hospital, Washington, DC

Katherine E. Warren, M.D.
pediatric oncologist
Dana-Farber Cancer Institute, Boston




Alicia Gonzalez, VA
Camden Wiseman, VA

Community Representatives

Jarrod and Cherie Aucoin, LA
(Ali Rose)
Mary T Callahan, TX
Tierney Callahan, TX
   (Run with the Saints)
Doug & Lydia DeFeis, FL
Michael Greenspun, MD
Kyle Killeen, NJ
   (Kyle's Heroes)
Kate Lund, MA
Barbara Norris, MA
Carol A. Parham, CT
Linda Quackenbush Turner, UT
Andrew Schoenfeld, CA
Michael Schoenfeld, DC
Diane Smith, MD
   (JKS Spirit Fund)
Brittany Truitt, FL
Cindy Truitt, FL
   (Tennis for Tumors)
Nancy Ward, IL
Susan M. Young, MD



Thanks to Our Sponsors