In February 2005, our 13 year old son Matthew, a healthy soccer player and swimmer, started complaining of a major headache that was keeping him up at night and leaving him exhausted in the morning. Within ten days, we made three visits to our pediatrician. On the third visit, an MRI was ordered, and a …
12th Annual International Symposium on Pediatric Neuro-Oncology The Childhood Brain Tumor Foundation was pleased to be amongst the supporters for the 12th ISPNO, held June 6-9, at the Nara-Ken New Public Hall in Nara, Japan (the oldest capital area in Japan). Dr. Masao Matsutani, the President of the 2006 ISPNO and Dr. Roger Packer, …
It was September 2003. Our son Ryan, 13, was playing catch in the backyard with his Dad; he loved to play baseball and had just completed playing with a travel team that summer. He complained of some light double vision which seemed to come and go, so we made an appointment with the optometrist. The …
Introduction: written by Jeanne Young, President, The Childhood Brain Tumor Foundation-Maryland, Workshop Administrator On Monday, May 22, 2006 the Childhood Brain Tumor Foundation (CBTF), Germantown, MD, and the Children’s National Medical Center’s (CNMC) Department of Neurology, Washington, DC, Co-Sponsored the Juvenile Pilocytic Astrocytoma Workshop: “Towards Biologic Based Therapies”. This full day, Professional Workshop was conducted …
May 4th, 1998: having just completed my own race, I pin a race number for the Fun Run on the front of Logan’s T-shirt. His expression shows both wonderment and excitement, and briefly takes an extra second to register it in my mind. It is an expression everyone should wear just before running a race, …
This is the story of Shawna Marie from Georgia and little Marie from Louisiana who were diagnosed with a glioblastoma multiforme Stage IV brain tumor in August of 2004. The girls met while they were patients at St. Jude Children’s Research Hospital in Memphis, TN and became fast friends during their frequent stays at Ronald …
All I ever wanted was a healthy child. Justin seemed to be the healthiest of all the nieces and nephews. He had the heartiest appetite, loved sports even as a toddler, and he was even referred to as the “bruiser.” He was such an easy baby. His laid back demeanor, and his warm smile could …
Christmas vacation had just ended and it was the beginning of a new year, 1993. I was fourteen-years-old, a freshman in high school, and had not been feeling well for some time. However, my physical complaints were quite vague which made it difficult for my pediatrician to identify the problem. Supposedly many things can cause …
Most children worry about imaginary monsters that live under their bed. Children with brain tumors worry about a real monster, the monster that lives in their head. Cancerous brain tumors are devastatingly real for far too many Little Big Dogs and their families. It is this most heartbreaking diagnosis that must demand the most ground …
