Jeanne P. Young

President and Founding Member of CBTF

Mrs. Young is the President and one of the Founding members of the Childhood Brain Tumor Foundation, an all-volunteer nonprofit organization founded in 1994 dedicated to supporting research, heightening awareness, and improving the quality of life for children affected by brain tumors. Her dedication to the cause comes from many cancer-related challenges her family has faced. At the age of 17 she lost her father to brain cancer. Her son is a long-term brain tumor survivor. She has taken these tragedies and turned her efforts to helping others in this situation through patient advocacy, awareness, and support for childhood brain tumor victims and their families.

Mrs. Young has served as a patient advocate, board member, and in various other roles in a number of related organizations, including:

  • Founding member of CBTF-VA in 1994, location change founded in MD in 2007
  • Patient Advocate Steering Committee (2011 to 11/2017)
  • Patient Advocate Reviewer – Department of Defense, Peer Review Cancer Related Program (PRCRP) (2009 to present)
  • Patient Advocate – Children’s Oncology Group (COG) Developmental Therapeutics Steering Committee (2007 to 2/2017)
  • Patient Advocate – National Cancer Institute (NCI) Clinical Imaging Steering Committee (2011 to 11/2017)
  • Consumer Advocate in Research and Related Activities – NCI Special Emphasis Panels and Specialized Panel of Research Excellence (2000 to present)
  • Member, Central Institutional Review Board, Pediatrics 2009 to 1/2016)
  • Member, NCI Safety Monitoring Committee (2007 to present)
  • Member, American Brain Coalition (2009 to present)
  • Patient Advocate–National Cancer Institute Sub-Committee D (2004 to 2006)
  • Committee Member – Pediatric Brain Tumor Consortium Parent/Family Committee (2004 to 2019)
  • Board Member – Pediatric Brain Tumor Consortium Foundation (2007 to 2019)
  • North American Brain Tumor Coalition (2001 to 2008, various roles, Secretary, Vice Chair, and last as Co-Chair)
  • National Institutes of Health/National Cancer Institute – Brain Tumor Progress Review Group for Pediatrics, Immunology and Metastatic Brain Tumors, participant (2000)
  • JPA Workshop, organized with Dr. Roger Packer (2006)

Education:

University of Maryland, BA, Arts/Psychology
International Symposium on Pediatric Neuro-Oncology, 1998 to Present
Society for Neuro-Oncology, 2000 – 2008, 2012 to present

Employment:

MCPS Educational Foundation, Inc. – Program Administrator (part-time)

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