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Personal Stories

Stories of Patients and their Families

CBTF has been acquainted with many patients and their families over the years as they navigate the journey of childhood brain tumors. We are honored to have been a part of their journey and appreciate their willingness to share their stories with us, as well as others that may be on a similar journey.

No story is the same as the next. All of them are stories of courage in the face of the unknown.

Please be aware that there is sensitive content on this page and use parental discretion when reading or discussing with younger children.

CBTF Wall of Heroes

SURVIVOR STORIES

These are stories of patients and families that courageously fought and won their battle with childhood brain tumors. These stories have been provided with permission for publication for the Childhood Brain Tumor Foundation.

Ten Years Later: “Wheel of Fortune”

I Am Chosen

Memories of a Childhood Brain Tumor

Diagnosed at 13, Our Son’s Courageous Journey

Ben’s Story

Justin’s Journey

No Ordinary Year

Eric’s Story

A Sibling’s Perspective

Kayleigh’s Story

Adult Survivor Explores Coping as a Process

Dave & Dallas: Taking it on the Road

Memories of an Adolescent Brain Tumor

Bartrum Racing

Ryan’s Story

The Race

A Mom’s Memories

Larry and Judith, the Dynamic Duo

Going Full Circle

A Christmas Not Taken for Granted

A Special Letter from Jason

A Message from Kyle

My daughter is a true success story!

Small but Mighty

Kyle’s Heroes

IN REMEMBRANCE

These are stories in memoriam of patients, along with their families, who courageously fought the battle with childhood brain tumors and did not survive. Though we will always be encouraged by their perseverance, resilience and strength. These stories have been provided with permission for publication for the Childhood Brain Tumor Foundation.

Ian Hahn: Skate-a-Thon

Stories of Russ

Second Annual Ricky Knight Memorial Basketball Tournament

Team 24 Hour Roadside Persistence

In Honor of Kayla Wenger

A second chance …

Making a Difference by Funding Diffuse Intrinsic Pontine Glioma, an Understudied Tumor

Remembering Ricky

Ali, A Special Angel

Our Mason

Shawna Marie and Little Marie: An Amazing True Story

Dash: The Big Dog of Superheroes

Amy, Always Remembered

Swetha: An Angel from Heaven

Baby Jay’s Journey

Sean’s Story

A Tribute to Emily Mau

What I Can Tell You about Losing a Sister to Cancer

If you are interested in sharing your story with The Childhood Brain Tumor Foundation and other patients/families, please contact us and send us your story.

The Childhood Brain Tumor Foundation

“Together, Reaching for a Cure”

301-515-2900 or 877-217-4166

CBTF Sponsors and Partners

Surgical Theater
FD Associates-CBTF Sponsor
Run with the Saints Houston, TX event

If you are interested in becoming a Sponsor or Partner of CBTF,

please contact us. Thank you!

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